Monday, July 22, 2013

How to be genuine or, what I did this summer

I've struggled for a while with what to write about on my blogs. How many times can my readers really listen to an emotional spill about my children with special needs? How many craft projects are really that interesting? I worry about what strangers will think of my blogs, or what magazines and publishers will think as they stop by based on proposals I send out. Do I talk less about my kids and life as a mom? Isn't that unprofessional?

These questions are dizzying and quite frankly, keep me from writing anything at all. Here is one fact you need to know about me that's more important than any other fact you will ever know and that is: I'm GENUINE. I can't stand fake. Fake smiles, pretending, trying to be something I'm not. I really despise it and am quite bad at it. So, I've decided to make a decision to go with the one thing that I really know about myself and to be genuine. That being said, here is my summer so far:




*Went to Disneyland which was awesome. My boys loved Carsland (ok so did I) and ended I up buying a season's pass (that was so cheap after our stay there I couldn't say no). Now I'm just a girl, saving up for her next adventure. I love being able to have adventures to look forward to. So on really bad days, I can close my eyes and think about what ride I'm going to ride next, or what Disneyland looks like at Christmastime. It gets me through those really hard days. And is somewhat of an escape for me when the challenges of motherhood can get the best of me.


 
*Discovered the library again. After a pretty scary threat that I received from a homeless man last 
 summer, I've been nervous to take my kids near the library. But they just love to read and play so I developed a systematic approach. I circle the place first and make sure there's no violence or scary people and then I take my ducklings in. They love it!

*Did our best to stay cool in the scorching 116 degree temps Redding gets. This was a challenge since my kids don't understand how to NOT play outside.



Enjoyed a wonderful fourth of July with our cousins in Sacramento. We decided to do a cool art project for flag shirts this year which was really awesome. Only problem is, it led to Elijah's first meltdown about his hands. He asked me for the first time "Why did God make me look different than everyone else?" It broke my heart as it was the question I had been dreading him asking me since the moment he was born. Fortunately I was ready, and I am proud to say I got through my little schpeel without shedding one single tear. That takes effort folks. Fortunately, I got to tell him that the very next day we were off to handcamp where he could meet other kids just like him.


*Which brings me to handcamp. No way am I gonna give a tiny blurb on the lifechanging affects it had on Elijah. It will have to be a seperate blog post. But for now, let me just say it was amazing and we are blessed to have this community of parents and kids and people who take time out of their lives to play with, nurture and love on kids with hand differences. Just looking at this picture makes me tear up.


We also got a lot of swimming in so far. And even tried our hand at kayaking. Which, with three small
children isn't easy. Noah has been especially brave
this year, trying new things. He's getting to be so big standing next to his big brother.









I also got some not great news about Olivia's therapy. Her Sensory Processing Disorder continues to be a challenge. We're working everyday and she's getting better and better but, there is still a lot to go. Last year, we discovered that she had a connection with water. She would go under for a while and never be scared or cry. She would try to swim with little effort and not mind a bit floating on her back. Her therapy is coming to an end, though she still needs a lot of help. I've been trying to brainstorm ways I could help this little water baby and heard of a really cool thing called swim therapy.

 For sensory kids, swimming feels good on their skin. The pressure makes them feel great, and because she often has trouble controlling her muscles, the weightlessness of water allows her to be a graceful little fish. When there's not sun beating down on her face, she is quite content to be in the water for... well forever.

Because we live in Redding, there aren't a lot of options out there for sensory kids. In fact, there aren't any past age 3. So I applied for some funding at our local YMCA and researched how to do swim therapy on my own. Between Elijah and Olivia I've been doing kid therapy for 6 years. I was pretty sure I could hack it in the water and was determined not to let my baby girl slip through the cracks. Problem is.... we didn't qualify for funding. I have been pretty discouraged about it. Still not giving up, but feeling like I'm tired of fighting and nothing happening. It feels like punching underwater.

But still we press on. I'm considering several next steps. Possible fundraiser? Oh I hate asking for money. Maybe haggling with the manager? I'm not sure. The point is, it's been a summer full of happy times and also obstacles.

And here we are, back where we started. This is me, vowing to be more transperant about my life. My boring, mundane life. This is what life looks like with 3 kids, 2 of them struggling through disabilities. But we manage to make memories, and laugh and have good times together. This is my life.

1 comment:

Jenny said...

I love you. And your sweet family. You're a super mama and an inspiration.